CIHR-IHDCYH Sustainability Workshop on June 2, 2024

Event Description

  • Workshop Title: Maintaining Momentum and Strategies for Sustainability of Human Development, Child and Youth Health Research Groups in Canada
  • Location: Vancouver BC
  • Hosted by the CIHR Institute of Human Development, Child and Youth Health (IHDCYH)


There are many human development, child and youth health research groups in Canada (e.g., networks, consortiums, cohorts, platforms, alliances). Most of these groups are supported by time-limited grants from various local, provincial, and federal funding agencies (including CIHR). Sustainability and legacy planning is a critical task for research groups, but one that often is not given the attention it deserves. This workshop will bring together key representatives from these research groups to explore strategies for maintaining momentum and long-term sustainability. The workshop will be facilitated by experts in start-up, management and sustainability of large-scale research initiatives, as well as change and transition leadership. The workshop will also feature speakers from groups who have or are navigating issues related to sustainability and legacy and those with expertise in areas that should be considered when planning for sustainability.

Workshop Objectives

Explore Successful Strategies: Successful strategies employed by research groups to maintain momentum and promote sustainability will be shared. Participants will learn about and discuss practical approaches and best practices for overcoming challenges.

Promote Collaboration and Knowledge Mobilization: The importance of collaboration, knowledge mobilization and demonstration of impact in sustaining research will be emphasized. Participants will explore ways to foster meaningful partnerships, as well as discuss opportunities to demonstrate the benefits of their work.

Ensure Practical Application: Attendees will leave with actionable insights and tools that can be applied to their own research networks, ensuring that the event contributes directly to the advancement, sustainability, and legacy of their work.

Webinar Agenda

Time Item
7:30 – 8:30am Registration and Breakfast
8:30 – 8:45am

Traditional Opening

Elder Roberta Price

8:45 – 9:00am


Christine Chambers

9:00 – 10:00am

Plenary: Lessons learned over 25 years with research networks

Diana Royce

10:00 – 10:20am Health Break
10:20 – 11:15am

Panel: Sustainability Stories: Approaches, Successes, Challenges and Change

Annette Majnemer, Nominated Principal Investigator and Scientific Co-Director, CHILD-BRIGHT

Joseph Ting, Associate Director, Evidence-based Practice for Improving Quality (EPIQ), Canadian Neonatal Network

Susan Samuel, National Director, ENRICH

Moderator: Diana Royce

11:15 – 12:00pm

Change and Transition

Scott Comber

12:00 – 1:00pm Lunch
1:00 – 2:45pm

Practical Strategies and Approaches for Transitions
Group/Individual work

Scott Comber

2:45 – 3:00pm Health Break
3:00 – 3:40pm

Practical Strategies and Approaches for Transitions
Group/Individual work

Scott Comber

3:40 – 4:40pm

Panel: Important Considerations for Sustainability Planning

Charu Kaushic, Scientific Director, CIHR-Institute of Infection and Immunity

Lynette Lucas, Director of Health, Nuu-Chah-Nulth Tribal Council's Department of Health

Ngawai Moss, Honorary Research Fellow, Queen Mary University of London

Vivian Tsang, National Director, KidsCan

Emily Gruenwoldt, President and CEO, Children's Healthcare Canada

Moderator: Steven Miller

4:40 – 4:50pm

Closing Comments

Christine Chambers

4:50 – 5:00pm

Traditional Closing

Elder Roberta Price


Elder Roberta Price

For over 30 years, Dr. Elder Roberta Price has actively shared her leadership, wisdom and teachings at UBC and throughout the Lower Mainland to assist both Indigenous and non-Indigenous community members to achieve improved outcomes in health care. A member of the Coast Salish Snuneymuxw and Cowichan Nations, she has been instrumental in helping to create shared spaces for both Indigenous and Western approaches to healing and health. Her ongoing involvement and leadership in research projects have been key to the continued work of decolonizing health care and creating cultural safety and equity for Indigenous patients.

Christine Chambers
Scientific Director, CIHR Institute of Human Development, Child and Youth Health

Dr. Christine Chambers is an international leader in the study of children's pain and an innovator in patient engagement, partnerships and knowledge mobilization. As a clinical psychologist and national voice for children's health, Christine creates purposeful connections with diverse groups to move research from ideas to impact, improving the daily lives of children, youth and families. Twice named one of Canada's Top 100 Most Powerful Women by the Women's Executive Network, Christine has published over 200 articles in peer-reviewed scientific journals and is recognized in the top 2% of the most cited scientists in the world.

As Scientific Director of the Institute of Human Development, Child and Youth Health (IHDCYH) at the Canadian Institutes of Health Research (CIHR), Christine is steering a bold vision to foster research that promotes better beginnings, vibrant childhoods and empowered youth. She is a Professor and Tier 1 Canada Research Chair in Children's Pain at Dalhousie University and faculty member in the Centre for Pediatric Pain Research at IWK Health Centre. Her acclaimed research program has helped establish Canada as a leader in children's pain research. She is also the Scientific Director of Solutions for Kids in Pain (SKIP).

Diana Royce
President, Deerfield Group

Dr. Diana Royce is President of The Deerfield Group Inc., a boutique management consulting firm, based in Burlington, Ontario. Dr. Royce specializes in strategic and operational planning; meeting facilitation; and start-up, management and wind-down of national and international research networks. Dr. Royce has over 25 years' experience in management and governance of Networks of Centres of Excellence (NCEs) and has consulted to over 16 different research and innovation networks across Canada.

She currently serves as Executive Director of the NanoMedicines Innovation Network at The University of British Columbia; and is the President & CEO of the Allergy, Genes and Environment Network - the legacy not-for-profit organization arising from AllerGen NCE at McMaster University of which she was Executive Director from 2004-2019. From 1998-2002, Dr. Royce was Managing Director of the Health Evidence Application and Linkages Network (HEALNet), an NCE also headquartered at McMaster University.

In 2019, Dr. Royce received the Canadian Thoracic Society Research Partnerships Award in recognition of her "leadership in building community partnerships to advance respiratory research and education," and the Canadian Allergy, Asthma and Immunology Foundation Award in recognition of her contributions to the development of the Canadian Allergy, Asthma and Immunology Foundation.

Dr. Royce holds degrees in Political Science from the University of Waterloo and Queen's University, and a Doctorate in Education from the University of Toronto.

Scott Comber
Professor, Dalhousie University

Dr. Scott Comber gained over 30 years of leadership experience in the education, financial, IT, health care and consulting fields. He established and incorporated two of his own companies before assuming his current role, University Teaching Fellow at the Rowe School of Business, Dalhousie University, Nova Scotia, Canada. Scott is the president of LeadX, a firm specializing in change management, leadership, and strategy.

Scott's primary research areas of foci are the scholarship of teaching and learning, applied complexity science approaches to healthcare systems (critical care), and leadership development (academic and physician).

Scott practices in the areas of organizational effectiveness, systems and complexity, conflict resolution, and change management. He is action oriented and practical. Scott works with students, teams and organizations to develop exceptional leaders, create conflict resolution systems, and facilitate teams and leaders through change.

Scott is a keynote speaker, author, and award-winning teacher. He has been quoted in sources such as the Globe and Mail, Financial Post and Business Week. In addition, he holds an MBA (Finance) an MA (Human Development) and a PhD in Human and Organizational Systems. Scott is also certified as an executive coach, is an editorial board member of the Canadian Journal of Physician Leadership, and is a faculty member with the Canadian Medical Association - Joule. He originates from Nova Scotia, and outside of work, he focuses on his family and raising twins, Mac and Ella.

Panel: Sustainability Stories: Approaches, Successes, Challenges and Change

Annette Majnemer
Nominated Principal Investigator and Scientific Co-Director, CHILD-BRIGHT

Dr. Annette Majnemer OT, PhD, FCAHS is an occupational therapist with doctoral training in the neurosciences. She is Professor at the School of Physical & Occupational Therapy, a Senior Scientist at the Research Institute - McGill University Health Centre (Montreal Children's Hospital), and a member of Montreal's Centre for Interdisciplinary Research in Rehabilitation (CRIR). She is a Fellow of the Canadian Academy of Health Sciences, having served on their Board (2016-21) and Executive (2021-23). Her research focuses on early identification strategies for children at high-risk for disability, and intrinsic and extrinsic factors that influence child/family outcomes. She also studies knowledge mobilization and implementation strategies that promote evidence-based rehabilitation practices. She is the nominated principal investigator of CHILD-BRIGHT, a CIHR SPOR Network with patient-oriented research focused on children with brain-based disabilities and their families. CHILD-BRIGHT's mission is to foster a movement for change: moving patients into research teams, moving research into improved practice and policy, and moving children and families forward towards brighter futures.

Joseph Ting
Associate Director, Evidence-based Practice for Improving Quality (EPIQ), Canadian Neonatal Network

Dr. Ting is a middle-career academic clinician, devoted to improving neonatal health. As a Staff Neonatologist, he cares for high-risk infants born at the threshold of viability as well as those requiring surgical intervention and multi-disciplinary care.

His areas of research interest are in (1) neonatal infection & antimicrobial stewardship (2) neonatal haemodynamics & Targeted Neonatal Echocardiography and (3) childhood outcomes of at-risk infants. He has had a prolific research output throughout his clinical and research posts, including >130 peer-reviewed publications and three book chapters.

He is currently a member of the Executive Committee and Annual Report Review Committee of Canadian Neonatal Network. He has been nominated to be the Associate Director and co-Chair of the nosocomial infection group of Evidence-Based Practice for Improving Quality (EPIQ) initiative, a national multi-disciplinary collaboration that facilitates the implementation of evidence-based practice changes to improve neonatal outcomes.

His goal in the next decade is to improve newborn care in Canada and worldwide, through clinical research, education and advocacy.

Susan Samuel
National Director, ENRICH

Dr. Samuel is a Professor in the Departments of Pediatrics and Community Health Sciences at the University of Calgary's Cumming School of Medicine, and a member of the Alberta Children's Hospital Research Institute and the O'Brien Institute of Public Health. She holds a Tier 1 Canada Research Chair in Precision Medicine and Data Science in Child Health.

She received her undergraduate medical degree from the University of British Columbia, and completed postgraduate medical training in pediatrics and nephrology at SickKids Hospital in Toronto. She has a MSc in Clinical Epidemiology from the Institute of Health Policy Management and Evaluation at the University of Toronto.

Her research goal is to improve care and outcomes of children with chronic disease, focusing on kidney disease. She leads the Canadian Childhood Nephrotic Syndrome Project, a national initiative designed to evaluate the impact of care variation on patient outcomes and to conduct clinical trials. She also leads the Transition Navigator Trial research team, a multi-disciplinary group evaluating effectiveness of interventions to improve transition to adult care. Her work is funded by the Canadian Institutes of Health Research and various foundations. She serves on national and international committees working to increase research capacity, and to improve translation of evidence into practice.

In her role as Director of the ENRICH (Empowering Next-generation Researchers In perinatal and Child Health) health research training platform, she is helping scholars establish successful careers in perinatal and child health research, which she is her passion.

Panel: Important Considerations for Sustainability Planning

Charu Kaushic
Scientific Director, CIHR Institute of Immunity and Infection

Dr. Charu Kaushic, PhD, is the Scientific Director of the Canadian Institutes of Health Research (CIHR) - Institute of Infection and Immunity. She is a tenured Full Professor in the Department of Medicine in McMaster University, Hamilton, Canada, with cross appointments in the Department of Obstetrics and Gynecology as well as the Department of Biochemistry and Biomedical Sciences at McMaster. Dr. Kaushic is an immunologist by training who has extensive teaching and training experience in immunology and has spent 24 years running an interdisciplinary research program in women's reproductive health, specifically basic, clinical and translational research examining susceptibility and immune responses to sexually transmitted viruses, HIV-1 and HSV-2. In her role for CIHR, she is responsible for making decisions for CIHR's strategic investments in the area of infection and immunity, nationally and internationally. Her institute also provides scientific guidance for major Government of Canada research initiatives including HIV/STBBI, Antimicrobial Resistance and Hepatitis C. During the COVID-19 pandemic, she was closely involved in shaping CIHR's research response to the pandemic and served on several leadership tables. Dr. Kaushic was inducted into the Government of Canada's Women of Impact Online Gallery in 2021 and the Canadian Academy of Health Sciences in 2022. Dr. Kaushic has a special interest in public education, especially on women's reproductive health issues.

Lynnette Lucas
Director of Health, Nuu-Chah-Nulth Tribal Council's Department of Health

Director of Health for the Nuu-chah-nulth Tribal council. Primary focus is on health service delivery in our communities with a goal of integrating health research as a way to enhance service delivery to our communities while validating traditional Indigenous ways of knowing and being and supporting culturally safe practice for incoming providers.

Ngawai Moss
Honorary Research Fellow, Queen Mary University of London

Ngawai Moss is a dedicated advocate for women's health. She transitioned from the marine sector to health research after participating in a clinical trial during pregnancy. Her collaborations with patients, clinicians, researchers, and organisations have been pivotal in ensuring patient's perspectives shape research and the research agenda. Ngawai is a co-investigator on several women's health and infant feeding studies, she is also an honorary research fellow at Queen Mary University of London and cofounded Elly Charity. She advises on patient involvement for institutions like the UK National Institute for Health Research, Health Education England, the Royal College of Obstetricians and Gynaecologists, and numerous universities and charities, receiving multiple awards for her work. Ngawai co-chairs a global multidisciplinary commission named BRIDGE (Better Research, Information and Data Generation for Empowerment), working to ensure women with chronic diseases are equipped to make shared decisions about their treatment before, during, and after pregnancy.

Vivian WL Tsang
National Director, KidsCan

Dr. Vivian WL Tsang has her MD from UBC, MPH from Harvard, ICD.D from U of T Rotman, and is a DPhil Candidate at Oxford University. Dr. Tsang works as a psychiatry resident doctor doing both inpatient and outpatient clinical work. Vivian is also heavily involved in paediatric patient advocacy through her positions as National Director of the KidsCan Program, a youth research advisory group involving 17 paediatric centres across Canada. She continues to serve on the Steering Committee of the Canadian Childhood Cannabinoid Clinical Trials and is a mentor on the ENRICH IMPACT platform building capacity in clinical trials in Canada. She is the CEO and founder of a Canadian Charity, The HOPE Initiative Foundation, which works with youth across the country to gain competitive post-secondary admission and be supported in their post-secondary to career transitions.

Emily Gruenwoldt
President & CEO, Children's Healthcare Canada

Emily is a trusted voice and passionate champion for Canada's 8 million kids. She advances a vision for vibrant, healthy children and youth as the President & CEO of Children's Healthcare Canada, a national, non-profit association representing over 40 healthcare delivery organizations serving children, youth and families. She is also Executive Director of the Pediatric Chairs of Canada. Previously, Emily brought her strategic leadership to the Canadian Medical Association in key Director-level roles, and to the Board Tables of The Ottawa Hospital, Arnprior Regional Health, and Care for Home and Healthcare Services. She is also the co-founder of Emerging Health Leaders.

Steven Miller (Moderator)
Professor and Head, Department of Pediatrics, Faculty of Medicine, UBC

Dr. Steven P. Miller is Head and Professor of the UBC Department of Pediatrics and the Chief of Pediatric Medicine at BC's Children Hospital. He is a Fellow of the Royal Society of Canada, holds the Hudson Family Hospital Chair in Pediatric Medicine and James & Annabel McCreary Chair in Pediatrics, and was previously a Canada Research Chair in Neonatal Neuroscience. Leading a multidisciplinary team, his research program focuses on better understanding of how intensive care impacts brain development and injury in the newborn with a focus on those born preterm or with congenital heart disease. The goal of his team's work is to promote strategies to prevent brain injury and to promote recovery with the ultimate goal of improving the lifelong health of children and their families. He is passionate about supporting the career trajectories of child-health researchers and served as President of the Society for Pediatric Research.

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