Patient Partner Committee

What is the Patient Partner Priority & Planning Committee (P4C)?

The Institute of Genetics' Patient Partner Priority & Planning Committee (P4C) is a group of patients and caregivers with lived expertise of genetic conditions who are passionate about health research. P4C members represent regions across Canada and reflect diverse backgrounds and life experiences.

P4C members contribute to the patient partnership priorities of IG, leading efforts to ensure patients' perspectives are incorporated in relevant IG activities and funding opportunities and provide advice/support to IG's activities as needed. P4C members:

  • help define patients' priorities in health research;
  • inform their respective communities about IG, CIHR, and their work with P4C;
  • support the use of the state-of-the-art practices in patient partnership across IG's activities;
  • contribute to developing content on patient partnership (for example: training modules, website content) for IG and the broader CIHR community; and
  • evaluate progress and impact of P4C.

Frequently Asked Questions

  • 1. How can I join the P4C?

    There is a call for applications approximately once per year. To be sure you receive notification when applications are open, you can join our mailing list.

  • 2. Do I need a specific genetic condition to be part of the P4C?

    We aim to have as much diversity as possible within the P4C, so we welcome applications from people with any type of genetic condition and their caregivers.

  • 3. What is the time commitment for the P4C?

    The P4C meets every 3 months for a half-day (approximately 4 hours, including breaks). There may be materials to read before a meeting and a few emails to respond to between meetings. Meetings happen online, so no travel is required.

  • 4. Do P4C members receive compensation?

    Yes! P4C members are offered compensation for their time and expertise, according to the Institute of Genetics' Patient Partner Compensation Guidelines.

  • 5. What happens at P4C meetings?

    At P4C meetings, members will share updates about themselves, engage in learning and conversation with guest speakers from CIHR, Institute partners, and more. Members discuss health research issues relevant to the Institute of Genetics, bringing their lived expertise to the conversation.

    Members may be offered opportunities to represent the Institute at events and presentations, participate in working groups, and contribute to discussions and resource-sharing outside of regular meetings.

  • 6. Are there other ways of being involved with the Institute of Genetics?

    Yes! Please email our Team Lead for Patient Partnership, Jillian, to express your interest and find out what opportunities are available:

Who is the Committee?

We will announce the inaugural membership of the Committee in late 2023. Stay tuned!

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