Strategy for Patient-Oriented Research – Management Action Plan (MAP)

Evaluation Recommendation Management Plan Actions & Rationale Expected Completion Date Timeline of MAP Action Responsibility for Action (VP/Director)
1. CIHR should use SPOR to inform an organization-wide approach to patient engagement in research to continue its leadership role, further investment and sustain progress on the outcome of a cultural shift toward POR. 1) CIHR will develop and implement a POR Action Plan to embed patient-oriented research approaches across its funding programs. December 2024 May 2023 - December 2024 VP LHS, POR

2. CIHR needs to do the following to improve the bprogram design and delivery of SPOR:

a) Increase awareness of the benefits of patient-oriented research among the Canadian public, the research community, decision-makers.

2a) CIHR will embed a focus on patientoriented research as part of the agency's brand, core communications messages and planning.

2a) CIHR will develop an enhanced outreach and communications strategy for SPOR, based on updated strategic objectives as determined through the SPOR Refresh.

December 2024 June - December 2024 AVP-GER, Communications
b) Enhance communications among and across SPOR core elements and CIHR institutes to avoid duplicative efforts, promote cohesion, and enhance partnerships. 2b) CIHR will work with SPOR funded entities and other partners to identify and implement an action plan to enhance collaboration and partnerships and reduce duplication. Ongoing June 2025 January 2024 – June 2025 and ongoing VP LHS - POR
c) Improve overall program monitoring to ensure that research is delivering on intended objectives, such as the engagement of communities and patients in research and provide feedback. 2c) Based on the SPOR Refresh, CIHR will develop a new SPOR logic model, performance measurement framework, indicators and reporting tools to enhance data collection – including data related to patient health care experiences, health outcomes and health system performance, in consultation with partners. June 2025 June 2024 - June 2025 VP LHS - POR
d) Establish consistent priorities, mandates, and readiness across SPOR core elements to support linkages, alignment and coordination of initiatives. 2d) Based on the results of the SPOR Refresh, CIHR will revise POR funding opportunity objectives and evaluation criteria to enhance consistency, linkages and alignment across SPOR investments. June 2025 June 2024 - June 2025 VP LHS - POR
3. CIHR should re-establish an external and internal governance structure for patient-oriented research with defined roles and responsibilities, including better representation from patients, partners, and funders, to improve SPOR's decision-making on patient-oriented research. 3) CIHR will renew internal and external governance structures for SPOR, following the SPOR Refresh. It is anticipated this structure will take a collective impact approach, influencing both CIHR and partner decision-making on patient-oriented research initiatives. June 2025 June 2024 - June 2025 VP LHS - POR

4. CIHR needs to improve patient and community engagement both in SPOR and in research in the following manner:

a) Embed equity, diversity and inclusion considerations into the recruitment of patient partners in order to address the underrepresentation of important patient partner groups in research.

4a) CIHR will develop and disseminate resources outlining leading practices for building Official languages; equity, diversity and inclusion into the engagement of PWLLE in research. September 2024 June 2023 - October 2024 VP LHS - POR
b) Harmonize patient compensation standards across SPOR. 4b) CIHR will work in collaboration with others within CIHR and Tri Agency partners to publish compensation guidelines and lead by example in changing the culture across research organizations and systems. June 2024 June 2023 – June 2024 AVP – GER
c) Enhance accountability for meaningful patient engagement. 4ci) CIHR will enhance support for peer reviewers to better assess the quality of patient engagement activities within grant proposals by developing guidance materials and clear evaluation criteria. 4ci) June 2026 April 2024 – June 2026 VP-LHS, VP-RP PDD, POR
4cii) CIHR renewed performance measurement framework will include indicators to measure impact and influence of patients on research. 4cii) June 2025 4cii) June 2024 - June 2025
d) Ensure consistency in engagement of Indigenous community members across SPOR core elements. 4d) CIHR will engage Indigenous Health research communities as part of SPOR Refresh activities to co-develop approaches for SPOR to support meaningful and respectful involvement of Indigenous health researchers and communities across all future SPOR investments. June 2025 June 2023 - June 2025 VP-LHS/ED POR
5. CIHR should improve the management and reporting of SPOR performance measurement data to better inform decision-making by establishing a clear set of measures to track progress on expected outcomes related to patient health care experiences, health, and health system.

5i) Based on the SPOR Refresh CIHR to develop a new SPOR logic model, performance measurement framework, indicators and reporting tools to enhance data collection – including data related to patient health care experiences, health outcomes and health system performance, in consultation with partners.

5ii) CIHR will consider past performance data in all proposals for funding extensions and renewals.

June 2025 June 2024 - December 2025 VP-LHS/ED POR

6. CIHR needs to further improve the following aspects of its financial monitoring and coding for SPOR:

  • Grants and awards expenditures, especially coding of core elements and tracking of partner contributions.
  • Operating and maintenance expenditures, specifically direct salary costs.

6i) Grants and Awards (Vote 5) Program lead (SPOR) to identify the specific program elements that are required to be tracked. Once identified, the Finance unit will support the Program sector by creating specific financial coding elements within the Grants Management System.

Note that such changes cannot be applied retroactively to a closed fiscal year.

6i) March 31, 2024 April 2024 - June 2025

VP-LHS, POR
CFO,
Finance, SPIR

for item 6iv: Lead will be Operations Support, Supporting teams are SPIR, PDD, POR, Finance, IMIS

6ii) Salary Expenditures (Vote 1): Effective in 2018-19, Finance established a revised business process which identifies positions funded through Treasury Board Submissions. Note that this has been applied to new Treasury Board Submissions and was not done retroactively. As a result, SPOR positions were not tracked this way in the past.

Moving forward, SPOR is to identify which positions are meant to support the program and at what percentage, which will allow Finance to track the proper positions for future reporting.

6ii) March 31, 2024

6iii) Non-Salary Expenditures (Vote 1): Finance to continue to track the nonsalary expenditures within the SPOR Fund center (ie: travel and other related expenses for SPOR meetings, SPOR Summit, as well as staff expenditures such as equipment, training and conference fees).

For expenditures in other Fund centres, SPOR to identify which activities directly relate to the SPOR function. Once identified, Finance to support in tracking these costs within the Financial System.

6iii) 2023-24 – September 2023

Future years: Annually

6iv) Partner Contributions:

  • Competition Partner: No enhancements needed, as competition partner details are systematically tracked already.
  • Applicant Partner: CIHR as a whole does not track actual applicant partner contributions.

    In response to this recommendation, options regarding collecting applicant partner contribution information will be explored (ie: through formal reporting requests, manual tracking), and a recommendation developed for CIHR with representatives from Partnerships, PDD, LHS and Finance, IMIS, Operations Support

6iv) June 2024

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