Patient Engagement in Research Resources

Patient engagement in research is an approach that involves meaningful and active collaboration in governance, priority setting, conducting research and knowledge translation. Depending on the context, patient engagement may also engage people who bring the collective voice of specific, affected communities.

While patient engagement is becoming more familiar – and required – in research projects, many researchers and patients are still unsure why this engagement is important. The process can appear daunting and many are uncertain how to begin. The “how-to” resources below provide practical and useful tools for researchers and patients who are interested in incorporating this process into current and/or upcoming research.

Practical guidelines and resources

Planning for your research project

Budgeting and compensation


Theoretical guidelines and resources

Articles, reviews, videos

Disclaimer: This Patient Engagement Resource page is offered for general information purposes only. Links to other sites are provided as a reference to assist you in identifying and locating other resources that may be of interest and do not constitute an endorsement of any viewpoints expressed. Content on this site or through any link is provided on an "as is" basis. IMHA and by the Canadian Institutes of Health Research (CIHR) do not warrant or guarantee the quality, accuracy or completeness of any information on this web site or on other sites – nor do we recommend or endorse any organization, work, product, service identified on this site or any other. IMHA, CIHR, as well as their respective employees and agents shall not be liable for any damages, claims, liabilities, costs or obligations arising from the use or misuse of the material contained in this website or a linked site.

Date modified: