Standing Committee on Ethics (SCE) meeting highlights: June 2-3, 2016

Implementation of the Ethics Action Plan

Communication and Engagement

  • The SCE participated in a panel with CIHR at the Canadian Bioethics Society (CBS) Annual Conference in May, 2016 to highlight achievements and activities in ethics at CIHR, introduce members of the SCE, and engage in a discussion with the CBS audience. In addition, the CIHR Chief Scientific Officer gave a report on ethics at the Canadian Association of Research Ethics Boards (CAREB) Annual Conference in May, 2016.
  • Building on suggestions from the SCE Communication Working Group, the web and social media presence for ethics at CIHR will be increased.

Issues discussed at the SCE

  • Human Germline Gene Editing
    A subgroup of the SCE presented a draft document on “Human Germline Gene Editing: Points to Consider, from a Canadian Perspective”. The SCE passed a motion to endorse the document and to share it with governmental and research bodies to inform their decision-making processes.
  • Ethical Imperative of Sex and Gender Considerations in Health Research
    The SCE heard a panel presentation on the importance of considering sex and gender in health research, with a focus on the role of CIHR. The SCE was supportive of an enhanced role for CIHR in this area. CIHR will present an action plan for sex and gender-based considerations in research at the next SCE meeting.
  • Ethics of Patient Engagement in Research
    The SCE heard an update on the new CIHR project on Ethics in Patient Engagement in Research, which aims to develop ethical guidance in this area. A Working Group of patients, ethicists and researchers will be established to lead the project, and will include members of the SCE.
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